Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease. 12 min read What Is Cystic Fibrosis? Cystic ...
When I first started dating my husband, who has CF, it felt like diving straight into the deep end of the CF world. I was completely overwhelmed at first, but everything changed when I discovered a ...
Receiving a late diagnosis of cystic fibrosis meant I spent my childhood and young adulthood being told that how I was feeling — both physically and emotionally — was wrong, and that I was “young” and ...
Throughout my childhood, I was thin and underweight thanks to cystic fibrosis. When my mother, my sister, and I would go to the trails near our house to exercise, I hated running. I could barely make ...
Growing up with CF, I always felt like my life was a ticking time bomb. Growing up, I didn’t really think about my own mortality and my life span; that all changed when I turned 18. I vividly remember ...
I’ve always believed that I had a story to share — this is the time to do so. I was born in 1984 to a set of parents with different lifestyles, not knowing how my life would turn out. I’d love to tell ...
The Delaware Valley Chapter - Philadelphia Office of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many ...
Help make CF stand for Cure Found. Give Once Give to a Walker Other Ways to Give ...
The introduction of highly effective CFTR modulator therapy (HEMT) has led to improved nutrition among people with CF and has been associated with increasing rates of overweight and obesity. As a ...
As someone who does not benefit from any CFTR modulators, I only have one option for improving my lung function — transplant. But just because it’s my only choice does not mean it’s an easy one to ...
When my son was diagnosed with cystic fibrosis, I was taught everything I needed to know about CF…except how to navigate the anxiety he experiences. As he’s gotten older, I’ve struggled to know how to ...
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